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SMArtCARE

Follow-up observation and therapy evaluation in spinal muscular atrophy

Service Announcement:

On the 25.09.2025, the SMArtCARE database will not be accessible starting from 3 p.m. CEST due to maintenance work!

The downtime is expected to last 2 hour, but unexpected delays may occur. Please do NOT use the database at all until the SMArtCARE data management has announced the end of the maintenance work. Please note that if the database is used during this maintenance window, data entered or actions performed may be lost! 


 

Statistik

86

centres initiated

52 neuropaediatric centres

34 neurological centres

2261

registered patients

1305 children

956 adults

31391 documented rounds

Observation period of up to

7.06

years

First visit: 07.08.2018

Data status: 29.08.2025