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SMArtCARE

Follow-up observation and therapy evaluation in spinal muscular atrophy

Service Announcement:

On the 03.07.2025, the SMArtCARE database will not be accessible starting from 12 p.m. CEST due to maintenance work!

The downtime is expected to last 1 hour, but unexpected delays may occur. Please do NOT use the database at all until the SMArtCARE data management has announced the end of the maintenance work. Please note that if the database is used during this maintenance window, data entered or actions performed may be lost! 


 

Statistik

85

centres initiated

51 neuropaediatric centres

34 neurological centres

2187

registered patients

1272 children

915 adults

29202 documented rounds

Observation period of up to

6.73

years

First visit: 07.08.2018

Data status: 30.04.2025