Centrum für Chronische Immundefizienz - CCI

SOCS1 Registry

The SOCS1 registry is an ESID Registry level 3 project, collecting data of patients with autoimmunity caused by a SOCS1 (Suppressor Of Cytokine Signalling 1) haploinsufficiency.

Information on the first steps is provided on the ESID website:

For L O G I N please see below "Benutzeranmeldung" --->

This SOCS1 specific website provides passwort-secured access to all documents needed. To obtain username and password please mail to cci.socs1@list.uniklinik-freiburg.de.

Lead investigators

Stephan Ehl, Freiburg, Germany

stephan.ehl@uniklinik-freiburg.de

Jerome Hadjadj, Paris, France

jerome.hadjadj@institutimagine.org

SOCS1 - Registry

Total number of patients registered: 68

Registration still open.

STUDY DOCUMENTS FOR PATIENT INCLUSION

Information on username and password for study documents

cci.socs1@list.uniklinik-freiburg.de

esid-registry@uniklinik-freiburg.de

Cooperation & Funding

The Medical Center - University of Freiburg - Center for Chronic Immonodeficiency (CCI) is member of the European Reference Network for Primary Immonodeficiencies, Autoinflammatory Disorders, Autoimmune Diseases, Paediatric Rheumatic Diseases (ERN RITA). In this context it cooperates with other members from different states in carrying out this study.

Further cooperation and funding partners