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Centrum für Chronische Immundefizienz - CCI

APDS Registry

The APDS registry is an ESID Registry level 3 project, collecting data of patients with the combined immunodeficiency Activated PI3-Kinase Delta Syndrome (APDS).

Information on the first steps is provided on the ESID website:

Link for APDS online documentation

https://cci-esid-reg.uniklinik-freiburg.de/EERS/login/auth

 

For   L O G I N    please see section on the right      --->

This APDS specific website provides passwort-secured access to all documents needed. To obtain username and password please mail to annette.uhlmann@uniklinik-freiburg.de

Lead investigators

Alison Condliffe, Sheffield, UK

a.m.condliffe@sheffield.ac.uk

 

Stephan Ehl, Freiburg, Germany

stephan.ehl@uniklinik-freiburg.de

 

Sven Kracker, Paris, France

sven.kracker@inserm.fr

 

APDS - Registry

Total number of patients registered: 107

Status: November 2019

STUDY DOCUMENTS FOR PATIENT INCLUSION

Benutzeranmeldung

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Information on username and password for study documents
Contact

MEDICAL CENTER - UNIVERSITY OF FREIBURG

Center for Chronic Immunodeficiency (CCI)
at Center for Translational Cell Research (ZTZ)

Breisacher Str. 115

D-79106 Freiburg

Tel. +49 (0) 761 270-77771

Fax +49 (0) 761 270-73770

Study Coordination

Dr. Nizar Mahlaoui

ESID Registry Working Party Chairman

nizar.mahlaoui@nck.aphp.fr

 

Dr. rer. nat. Annette Uhlmann

APDS Project Coordinator

annette.uhlmann
@uniklinik-freiburg.de

 

Dr. Gerhard Kindle

ESID Project Coordinator

esid-registry@uniklinik-freiburg.de