APDS Registry
The APDS registry is an ESID Registry level 3 project, collecting data of patients with the combined immunodeficiency Activated PI3-Kinase Delta Syndrome (APDS).
Information on the first steps is provided on the ESID website:
Link for APDS online documentation
https://cci-esid-reg.uniklinik-freiburg.de/EERS/login/auth
For L O G I N please see below "Benutzeranmeldung" --->
This APDS specific website provides passwort-secured access to all documents needed. To obtain username and password please mail to annette.uhlmann@uniklinik-freiburg.de
Lead investigators
Alison Condliffe, Sheffield, UK
Stephan Ehl, Freiburg, Germany
stephan.ehl@uniklinik-freiburg.de
Sven Kracker, Paris, France
APDS - Registry
Total number of patients registered: 178
Registration still open.
STUDY DOCUMENTS FOR PATIENT INCLUSION
Benutzeranmeldung
MEDICAL CENTER - UNIVERSITY OF FREIBURG
Center for Chronic Immunodeficiency (CCI)
at Center for Translational Cell Research (ZTZ)
Breisacher Str. 115
D-79106 Freiburg
Tel. +49 (0) 761 270-77771
Fax +49 (0) 761 270-73770
Prof. Mikko Seppänen
Chairperson Working Party ESID Registry
Dr. Maria Elena Maccari
APDS Study Physician
maria.elena.maccari@uniklinik-freiburg.de
Dr. rer. nat. Annette Uhlmann
APDS Project Coordinator
annette.uhlmann
@uniklinik-freiburg.de
Dr. Gerhard Kindle
ESID Project Coordinator