SOCS1 Registry
The SOCS1 registry is an ESID Registry level 3 project, collecting data of patients with autoimmunity caused by a SOCS1 (Suppressor Of Cytokine Signalling 1) haploinsufficiency.
Information on the first steps is provided on the ESID website:
For L O G I N please see below "Benutzeranmeldung (User login)" --->
This SOCS1 specific website provides passwort-secured access to all documents needed. To obtain username and password please mail to cci.socs1@list.uniklinik-freiburg.de.
Lead investigators
Stephan Ehl, Freiburg, Germany
stephan.ehl@uniklinik-freiburg.de
Jerome Hadjadj, Paris, France
SOCS1 - Registry
Total number of patients registered: 68
Registration still open.
Cooperation & Funding
The Medical Center - University of Freiburg - Center for Chronic Immonodeficiency (CCI) is member of the European Reference Network for Primary Immonodeficiencies, Autoinflammatory Disorders, Autoimmune Diseases, Paediatric Rheumatic Diseases (ERN RITA). In this context it cooperates with other members from different states in carrying out this study.
Further cooperation and funding partners
- ESID: Website
MEDICAL CENTER - UNIVERSITY OF FREIBURG
Center for Chronic Immunodeficiency (CCI)
at Center for Translational Cell Research (ZTZ)
Breisacher Str. 115
D-79106 Freiburg
Tel. +49 (0) 761 270-77771
Fax +49 (0) 761 270-74250
Prof. Markus Seidel
Chairperson Working Party ESID Registry
Dr. rer. nat. Annette Uhlmann
SOCS1 Project Coordinator
annette.uhlmann
@uniklinik-freiburg.de